haei.org is a domain that was created on 2004-03-13,making it 20 years ago. It has several subdomains, such as youngsters.haei.org asiapacific.haei.org , among others.
Description:We are a global non-profit network of patient associations and we are dedicated to raising awareness of C1-inhibitor deficiencies around the...
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What is HAE? - HAE International (HAEi) https://haei.org/hae/ |
Guidelines and Consensus documents - HAE International (HAEi) https://haei.org/resources/advocacy/guidelines-and-consensus-documents/ |
Who is HAEi - HAE International (HAEi) https://haei.org/about-haei/ |
What causes HAE? - HAE International (HAEi) https://haei.org/hae/what_causes_hae/ |
HAEi Youngsters https://youngsters.haei.org/ |
Frequently Asked Questions - HAE International (HAEi) https://haei.org/hae/faq/ |
HAE Global Conferences - HAE International (HAEi) https://haei.org/resources/advocacy/hae-global-conference/ |
Diagnosis - HAE International (HAEi) https://haei.org/hae/diagnosis/ |
The French Way https://haei.org/wp-content/uploads/2016/03/The-French-Way-brochure.pdf |
Diagnosis and treatment of hereditary angioedema with ... https://turkey.haei.org/wp-content/uploads/2018/12/1710-1492-6-15.pdf |
Hereditary angioedema with C1 inhibitor deficiency https://turkey.haei.org/wp-content/uploads/2018/12/1710-1492-9-29.pdf |
A systematic review of the efficacy and safety of a purified ... https://turkey.haei.org/wp-content/uploads/2018/12/1710-1492-6-S1-P32.pdf |
New international guideline for HAE management https://haei.org/new-international-guideline-for-hae-management/ |
How can HAE be treated? - HAE International (HAEi) https://haei.org/hae/how-can-hae-be-treated/ |
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Ip Country: Germany |
City Name: Frankfurt am Main |
Latitude: 50.1187 |
Longitude: 8.6842 |
for: HAE What is HAE? What causes HAE? HAE symptoms Attack Triggers Diagnosis How can HAE be treated? HAE and Children Women and pregnancy Patient stories Frequently Asked Questions About HAEi Who is HAEi Member countries Board of Directors Regional Patient Advocates Operations Contact HAEi NewsEvents News HAE News from Around the World Global Perspective Magazines Sign up for news Events Events worldwide 2020 HAE Virtual Global Conference HAE Global Conferences HAE Global Conferences and Workshops HAE Global Walk Camino Walk/Jakobsweg Walk HAEi Regional Conferences HAEi Virtual Regional Workshops Resources A-Z ACARE Centers globally Apps HAE Companion HAE TrackR Clinical trials COVID-19 and HAE Emergency Cards Family testing Frequently Asked Questions Glossary hae day :-) HAEi Advocacy Academy HAEi Connect HAEi Global Access Program HAE Global Conferences HAEi Regional Conferences A-Z HAEi Hosted websites HAEi LEAP – youngsters’ program HAEi Youngsters Patient stories Publications Global Perspective Magazines Guidelines and Consensus documents State of Management of HAE Regional Patient Advocates Regional websites Research Social media Tips when traveling Understanding HAE Videos Virtual Centers Women with HAE 99 Member Countries Loading... LIVING WITH HAE? YOU'RE NOT ALONE About HAE International Traveling on holiday? Plan a safe trip Check out the HAE Emergency Cards before you go 99 MEMBER COUNTRIES AROUND THE WORLD – united we are stronger! Learn more about HAE in your country HAE International PlusR 2024-04-09T15:49:02+02:00 Who we are Welcome to HAE International HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE. We are a group of compassionate HAE patients and care givers who make it our life’s work to raise awareness of hereditary angioedema (HAE), improve time to diagnosis, and fiercely advocate for approval and reimbursement of lifesaving therapies to everyone suffering from HAE. We provide our member organizations with specially designed tools and technical assistance that promote disease education and support activities addressing the unique needs of HAE patients and their families. HAEi is company and product neutral and enthusiastically supports drug discovery research aimed at the next generation of HAE therapies. Our great success in supporting clinical trials has resulted in a variety of approved therapeutic options. We work closely with expert physicians to continuously encourage a tailored, patient-focused approach to the use of available therapeutic options. Read more about HAEI here 99 Member countries HAEi Trending Topics that might interest you NewsEvents See what is happening in the world of HAE HAEi events around the worldClick here to see a list of all the events * *, * HAE Patient Workshop; HAE Saudi Arabia – Language(s): Arabic King Faisal Specialist HospitalResearch Centre Riyadh 11564 Saudi Arabia May 11, 2024 at 10:00 am - 4:30 pm * *, * hae day :-) 2024 – Language(s): All May 16, 2024 at All Day * *, * En tur i Regnbuen med HAE Scandinavia – Language(s): Danish ARoS Aarhus Denmark May 17, 2024 at 6:00 pm - 9:00 pm * *, * En tur i Laboratoriet med HAE Scandinavia – Language(s): Danish Anakist beerfood lab Odense Denmark May 29, 2024 at 6:00 pm - 9:00 pm * *, * SEE HAE meeting: Providing better care for HAE families – Language(s): Albanian , English May 31, 2024 - Jun 2, 2024 at 12:00 am * *, * En tur på Terrassen med HAE Scandinavia – Language(s): Danish Copenhagen Marriott Hotel Copenhagen Denmark Jun 14, 2024 at 6:00 pm - 9:00 pm The latest news from HAEiClick here to see a list of all the news 3 May, 2024 PlusR 2024-05-03T10:06:36+02:00 News from Eastern Asia From Regional Patient Advocate Lim Yong Hao The new [...] 3 May, 2024 PlusR 2024-05-03T10:03:57+02:00 News from Mediterranean, North Africa, Benelux and British Isles From Regional Patient Advocate Maria Ferron The year started [...] 3 May, 2024 PlusR 2024-05-03T10:00:02+02:00 News from Nordics, Germany, Austria, Switzerland, and Israel From Regional Patient Advocate Jørn Schultz-Boysen I am happy [...] 3 May, 2024 PlusR 2024-05-03T09:54:11+02:00 News from South East Asia From Regional Patient Advocates Anthony J. Castaldo and Henrik [...] 3 May, 2024 PlusR 2024-05-03T09:33:09+02:00 News from North America From Regional Patient Advocate Anthony J. Castaldo HAEi has [...] 3 May, 2024 PlusR 2024-05-03T09:25:27+02:00 News from Central America and Caribbean From Regional Patient Advocate Javier Santana HAEi delivered the [...] Patient stories Read the stories of HAE patients from around the world Pravalika Meduthuri, India (1995) PlusR 2022-07-14T13:15:36+02:00 Pravalika Meduthuri, India (1995) Pravalika Meduthuri, India (1995) Zoltan Maros, Hungary (1982) PlusR 2022-04-08T12:17:36+02:00 Zoltan Maros, Hungary (1982) Zoltan Maros, Hungary (1982) Michelle V. Coronado, Panama (1991) PlusR 2021-07-16T12:03:36+02:00 Michelle V. Coronado, Panama (1991) Michelle V. Coronado, Panama (1991) Cecilia Ramirez, Argentina (1966) PlusR 2021-05-10T08:45:38+02:00 Cecilia Ramirez, Argentina (1966) Cecilia Ramirez, Argentina (1966) Emily Wheeler, Australia (1998) PlusR 2021-05-10T08:44:54+02:00 Emily Wheeler, Australia (1998) Emily Wheeler, Australia (1998) See all the patient stories Stay Tuned Be the first to know what’s going on in the world of HAE First name * Last name * Email * Consent * I agree to the terms and privacy policy . CAPTCHA HAEi around the world Click on the map to get more specific information Regions /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/south-america /hae-member-countries/regions/north-america /hae-member-countries/regions/north-america /hae-member-countries/regions/north-america /hae-member-countries/regions/north-america /hae-member-countries/regions/north-america /hae-member-countries/regions/north-america /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean /hae-member-countries/regions/central-america-caribbean...
Domain Name: haei.org Registry Domain ID: 854773f6d25443bcab95ea3cab2be945-LROR Registrar WHOIS Server: http://whois.meshdigital.com Registrar URL: http://www.domainmonster.com Updated Date: 2024-03-17T12:04:28Z Creation Date: 2004-03-13T05:20:16Z Registry Expiry Date: 2025-03-13T05:20:16Z Registrar: Mesh Digital Limited Registrar IANA ID: 1390 Registrar Abuse Contact Email: abuse.contact@hosteuropegroup.com Registrar Abuse Contact Phone: +44.1483304030 Domain Status: ok https://icann.org/epp#ok Registrant Organization: HAEI - International Patient Organization for C1 Inhibitor Deficiencies Registrant State/Province: unknown Registrant Country: DK Name Server: ns43.domaincontrol.com Name Server: ns44.domaincontrol.com DNSSEC: unsigned >>> Last update of WHOIS database: 2024-05-17T12:50:41Z <<<